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Rare diseases — improving care and quality of life
Rare diseases — improving care and quality of life
Rare diseases — improving care and quality of life
Recommendation (2009/C 151/02) – action in the field of rare diseases
The 2009 recommendation from European Union (EU) countries on diagnosing, treating and caring for sufferers followed on from an EU strategy on rare diseases adopted in 2008.
The 2014 report presents an overview of the implementation of the rare diseases strategy to date. This focuses on improving the recognition and visibility of rare diseases, measures to help EU countries address the phenomenon and moves to develop wider EU-level cooperation, coordination and regulation.
Council Recommendation of 8 June 2009 on an action in the field of rare diseases (2009/C 151/02) (OJ C 151, 3.7.2009, pp. 7-10)
Communication from the Commission to the European Parliament, the Council, the European Economic and Social Committee and the Committee of the Regions on Rare Diseases - Europe's challenges (COM(2008) 679 final, 11.11.2008)
Report from the Commission to the European Parliament, the Council, the European Economic and Social Committee and the Committee of the Regions: Implementation report on the Commission communication on rare diseases: Europe’s challenges (COM(2008) 679 final) and Council Recommendation of 8 June 2009 on an action in the field of rare diseases (2009/C 151/02) (COM(2014) 548 final of 5.9.2014)
Commission Decision 731/2013/EU of 30 July 2013 setting up a Commission expert group on rare diseases and repealing Decision 2009/872/EC (OJ C 219, 31.7.2013, pp. 4-7)
last update 01.12.2016